Quality of Care for Systemic Lupus Erythematosus: Mind the Knowledge Gap.
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Clinical Guidelines
Authored By
Golder V, Morand EF, Hoi AY
Authored On
Interests
Immunology Allergy & Inflammation
Dermatology
Internal/Family Medicine
Speciality
Dermatology
Immunology Allergy & Inflammation
Internal/Family Medicine
Book Detail
volume
44
ISSN
1499-2752
Publication Date
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["Golder V, Morand EF, Hoi AY","Publisher: Journal Of Rheumatology Publishing Co Country of Publication: Canada NLM ID: 7501984 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1499-2752 (Electronic) Linking ISSN: 0315162X NLM ISO Abbreviation: J Rheumatol Subsets: MEDLINE","Journal Article; Review","2017-03-01","The Journal of rheumatology [J Rheumatol] 2017 Mar; Vol. 44 (3), pp. 271-278. Date of Electronic Publication: 2017 Jan 15.","English","1499-2752","Quality of Health Care*, Lupus Erythematosus, Systemic\/*therapy, Humans","Humans, Lupus Erythematosus, Systemic therapy, Quality of Health Care","The Journal of rheumatology","44"]
Description
Systemic lupus erythematosus (SLE) is a prototypical chronic multiorgan autoimmune disorder that can lead to significant burden of disease and loss of life expectancy. The disease burden is the result of a complex interplay between genetic, biologic, socioeconomic, and health system variables affecting the individual. Recent advances in biological understanding of SLE are yet to translate to transformative therapies, and genetic and socioeconomic variables are not readily amenable to intervention. In contrast, healthcare quality, a variable readily amenable to change, has been inadequately addressed in SLE, despite evidence in other chronic diseases that quality of care is strongly associated with patient outcomes. This article will analyze the available literature on the quality of care relevant to SLE, identify knowledge gaps, and suggest ways to address this in future research.