Introduction: Universally established comprehensive clinical bulbar scales objectively assessing disease progression in amyotrophic lateral sclerosis (ALS) are currently lacking. The goal of this working group project is to design a best practice set of provisional bulbar ALS guidelines, available for immediate implementation within all ALS clinics.<br />Methods: ALS specialists across multiple related disciplines participated in a series of clinical bulbar symposia, intending to identify and summarize the currently accepted best practices for the assessment and management of bulbar dysfunction in ALS Results: Summary group recommendations for individual speech, Augmentative and Alternative Communication (AAC), and swallowing sections were achieved, focusing on the optimal proposed level of care within each domain.<br />Discussion: We have identified specific clinical recommendations for each of the 3 domains of bulbar functioning, available for incorporation within all ALS clinics. Future directions will be to establish a formal set of bulbar guidelines through a methodological and evidence-based approach. Muscle Nerve 59:531-531, 2019.<br /> (© 2019 Wiley Periodicals, Inc.)
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The goal of this working group project is to design a best practice set of provisional bulbar ALS guidelines, available for immediate implementation within all ALS clinics. Methods: ALS specialists across multiple related disciplines participated in a series of clinical bulbar symposia, intending to identify and summarize the currently accepted best practices for the assessment and management of bulbar dysfunction in ALS Results: Summary group recommendations for individual speech, Augmentative and Alternative Communication (AAC), and swallowing sections were achieved, focusing on the optimal proposed level of care within each domain. Discussion: We have identified specific clinical recommendations for each of the 3 domains of bulbar functioning, available for incorporation within all ALS clinics. Future directions will be to establish a formal set of bulbar guidelines through a methodological and evidence-based approach. Muscle Nerve 59:531-531, 2019. \u00a9 2019 Wiley Periodicals, Inc.","url":"https:\/\/search.ebscohost.com\/login.aspx?direct=true&db=mdl&AN=30620104","isPdfLink":true,"isSAML":false,"an":"30620104","number_other":"","type_pub":"","issn_electronic":"1097-4598","languages":"English","language":"eng","date_entry":"","date_update":"","titleSource":"Muscle & nerve [Muscle Nerve] 2019 May; Vol. 59 (5), pp. 531-536. Date of Electronic Publication: 2019 Jan 22.","date_pub_cy":"","type_document":"","contract_publisher":"","authored_on":"2019-05-01","description":"Introduction: Universally established comprehensive clinical bulbar scales objectively assessing disease progression in amyotrophic lateral sclerosis (ALS) are currently lacking. The goal of this working group project is to design a best practice set of provisional bulbar ALS guidelines, available for immediate implementation within all ALS clinics.<br \/>Methods: ALS specialists across multiple related disciplines participated in a series of clinical bulbar symposia, intending to identify and summarize the currently accepted best practices for the assessment and management of bulbar dysfunction in ALS Results: Summary group recommendations for individual speech, Augmentative and Alternative Communication (AAC), and swallowing sections were achieved, focusing on the optimal proposed level of care within each domain.<br \/>Discussion: We have identified specific clinical recommendations for each of the 3 domains of bulbar functioning, available for incorporation within all ALS clinics. Future directions will be to establish a formal set of bulbar guidelines through a methodological and evidence-based approach. Muscle Nerve 59:531-531, 2019.<br \/> (© 2019 Wiley Periodicals, Inc.)","upload_link":"https:\/\/search.ebscohost.com\/login.aspx?direct=true&site=eds-live&db=mdl&AN=30620104&authtype=shib&custid=ns346513&group=main&profile=eds","no_of_pages":"","authored_by":"Pattee GL, Plowman EK, Focht Garand KL, Costello J, Brooks BR, Berry JD, Smith RA, Atassi N, Chapin JL, Yunusova Y, McIlduff CE, Young E, Macklin EA, Locatelli ER, Silani V, Heitzman D, Wymer J, Goutman SA, Gelinas DF, Perry B, Nalipinski P, Stipancic K, O'Brien M, Sullivan SL, Pioro EP, Gargiulo G, Green JR","header":{"DbId":"mdl","DbLabel":"MEDLINE Ultimate","An":"30620104","RelevancyScore":"861","PubType":"Academic Journal","PubTypeId":"academicJournal","PreciseRelevancyScore":"861.13134765625"},"plink":"https:\/\/search.ebscohost.com\/login.aspx?direct=true&site=eds-live&db=mdl&AN=30620104&authtype=shib&custid=ns346513&group=main&profile=eds","physicalDescription":{"Pagination":{"StartPage":"531"}},"additionalInfo":{"Authored_By":"Pattee GL, Plowman EK, Focht Garand KL, Costello J, Brooks BR, Berry JD, Smith RA, Atassi N, Chapin JL, Yunusova Y, McIlduff CE, Young E, Macklin EA, Locatelli ER, Silani V, Heitzman D, Wymer J, Goutman SA, Gelinas DF, Perry B, Nalipinski P, Stipancic K, O'Brien M, Sullivan SL, Pioro EP, Gargiulo G, Green JR","Corporate_Authors":"Contributing Members of the NEALS Bulbar Subcommittee","Journal_Info":"Publisher: John Wiley & Sons Country of Publication: United States NLM ID: 7803146 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1097-4598 (Electronic) Linking ISSN: 0148639X NLM ISO Abbreviation: Muscle Nerve Subsets: MEDLINE","Publication_Type":"Journal Article; Practice Guideline","Published_Date":"2019-05-01","Source":"Muscle & nerve [Muscle Nerve] 2019 May; Vol. 59 (5), pp. 531-536. Date of Electronic Publication: 2019 Jan 22.","Languages":"English","Electronic_ISSN":"1097-4598","MeSH_Terms":"Amyotrophic Lateral Sclerosis\/*rehabilitation , Deglutition Disorders\/*rehabilitation , Speech Disorders\/*rehabilitation, Amyotrophic Lateral Sclerosis\/complications ; Communication Aids for Disabled ; Deglutition Disorders\/diagnosis ; Deglutition Disorders\/etiology ; Disease Management ; Humans ; Referral and Consultation ; Speech Disorders\/diagnosis ; Speech Disorders\/etiology ; Speech Therapy","Subjects":"Amyotrophic Lateral Sclerosis complications, Communication Aids for Disabled, Deglutition Disorders diagnosis, Deglutition Disorders etiology, Disease Management, Humans, Referral and Consultation, Speech Disorders diagnosis, Speech Disorders etiology, Speech Therapy, Amyotrophic Lateral Sclerosis rehabilitation, Deglutition Disorders rehabilitation, Speech Disorders rehabilitation","Title_Abbreviations":"Muscle & nerve","Volume":"59"}}
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["Pattee GL, Plowman EK, Focht Garand KL, Costello J, Brooks BR, Berry JD, Smith RA, Atassi N, Chapin JL, Yunusova Y, McIlduff CE, Young E, Macklin EA, Locatelli ER, Silani V, Heitzman D, Wymer J, Goutman SA, Gelinas DF, Perry B, Nalipinski P, Stipancic K, O'Brien M, Sullivan SL, Pioro EP, Gargiulo G, Green JR","Contributing Members of the NEALS Bulbar Subcommittee","Publisher: John Wiley & Sons Country of Publication: United States NLM ID: 7803146 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1097-4598 (Electronic) Linking ISSN: 0148639X NLM ISO Abbreviation: Muscle Nerve Subsets: MEDLINE","Journal Article; Practice Guideline","2019-05-01","Muscle & nerve [Muscle Nerve] 2019 May; Vol. 59 (5), pp. 531-536. Date of Electronic Publication: 2019 Jan 22.","English","1097-4598","Amyotrophic Lateral Sclerosis\/*rehabilitation , Deglutition Disorders\/*rehabilitation , Speech Disorders\/*rehabilitation, Amyotrophic Lateral Sclerosis\/complications ; Communication Aids for Disabled ; Deglutition Disorders\/diagnosis ; Deglutition Disorders\/etiology ; Disease Management ; Humans ; Referral and Consultation ; Speech Disorders\/diagnosis ; Speech Disorders\/etiology ; Speech Therapy","Amyotrophic Lateral Sclerosis complications, Communication Aids for Disabled, Deglutition Disorders diagnosis, Deglutition Disorders etiology, Disease Management, Humans, Referral and Consultation, Speech Disorders diagnosis, Speech Disorders etiology, Speech Therapy, Amyotrophic Lateral Sclerosis rehabilitation, Deglutition Disorders rehabilitation, Speech Disorders rehabilitation","Muscle & nerve","59"]
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